Living with Parkinson’s disease can be a struggle, especially if you’ve just been diagnosed and aren’t sure what to expect or who to turn to. Good news is that there are countless resources available for those who want to learn more about Parkinson’s disease and how to be involved in raising awareness. Keep reading to learn more about life with Parkinson’s and how you can help researchers continue to find better forms of treatment.
Coping with a diagnosis
Sources such as The Michael J. Fox Foundation for Parkinson’s Research and the Parkinson’s Foundation offer great tips and insight to help you come to terms with your diagnosis. Some tips that they cover include:
- Realizing you’re not alone – an estimated 10 million people worldwide live with Parkinson’s disease.
- Hearing real stories from people with Parkinson’s disease. Check out this website for a wide range of bloggers that write about their lives and how Parkinson’s does, or doesn’t, impact their quality of life.
- Researching the disease. For most people, educating themselves about Parkinson’s disease makes them feel like they have more control and therefore power over it.
- Finding a medical team you trust. Finding a doctor that is not only experienced with treating Parkinson’s patients, but is also able to make you feel comfortable and heard is crucial.
- Being open to loved ones and building a support group. Though your first instinct may be to hide your diagnosis from others, it’s advised you don’t. Talk to your loved ones and let them give you the support you need as you battle living with the disease.
Living with Parkinson’s
The Parkinson’s Foundation explains that though Parkinson’s disease impacts each person differently, there are common steps you can take to have a higher quality of life. Common strategies for living a healthy life with Parkinson’s include:
- Maintaining a healthy level of nutrition and medications.
- Staying active through activities such as painting, exercising, yoga, etc.
- Connecting with a Parkinson’s disease community and support group.
- Volunteering for clinical trials to advance research for Parkinson’s disease treatment options.
The National Parkinson Foundation also provides articles that answer questions such as what type of pain levels to expect, traveling with Parkinson’s, if you should keep driving, and how to approach taking medications for the disease.
As you’re learning more about Parkinson’s disease and are finding yourself wanting to get involved in raising awareness, there are plenty of ways to get started. The Parkinson’s Foundation presents a number of ways to get involved, including “Moving Day” walks held at locations throughout the country with the mission of helping every person diagnosed with Parkinson’s live their best possible life. Moving Day not only raises funds towards research for the disease, it also provides a platform for The National Parkinson Foundation to support local communities through grants that provide health, wellness, and support to those who need it.
The National Parkinson Foundation holds a Moving Day walk in the city of Atlanta. Click here to learn more about the local walk and how you can get involved!
You can also donate, fundraise, and participate in raising awareness for Parkinson’s disease through The Michael J. Fox Foundation. This organization holds a wide variety of events across the country and are all focused on helping those suffering with the disease.
If you or a loved one are interested in learning more about Parkinson’s disease clinical research here at ACMR, click here to sign up for a trial today or call 404-881-5800 for more information.